Here is my baboon asleep on the hearth. This is where he slept all week. He loved it.
So we went home for a few days before going back to Ashland for Ava's blessing. Savannah had a good week at home. I took her to the doc on tuesday where they did an EEG. It showed no residual seizure activity. Everything came back normal. Her doc was very confused and decided to put her back on the depakote. I agreed. I loved her being off the drugs, but always felt better with her on them. My biggest fear is for her to have a seizure at school in front of her peers and I am not there to protect her.
So we left for Ashland thursday evening. It was a very wet 4th. The kids still had fun though. We set up their slip and slide and they played for hours. Ethan and Denzil became quite the dynamic duo. They were very cute together. It will take some time for Ruby and Emalene to appreciate one anothers company. I think they each saw the other as a threat.
Later in the evening, it was time for the fire works. My kids love loudness and fire. So much of their Daddy is in them. The Hurt boys put on quite a show.
Ethan could not be torn away from the fire pit and the marshmallows. I do not know how many he actually ate. Every time I turned around the boy was burning another one.
Late saturday and sunday became a picture taking opportunity. On Saturday, Larry Denzil took pictures of the entire Hurt clan. We also took couple shots of two of our most favorite Hurts, Sheba and Hope.
Sunday was Ava's blessing and we have a picture of her blessing circle. Sheba made the beautiful gown and coat. Ava truly looked like Heavenly royalty.
OK, if you are wondering why I did not get a picture of Ethan, he and Denzil escaped to their Sunbeam class together. This picture of Ruby makes her look so chubby. I don't think she is that chubby, but compared to Emalene, she was a giant.
Sunday was the beginning of a long monday for Larry Denzil and I emotionally. He and Savannah were walking hand in hand into the chapel Sunday morning when Savannah collapsed with a seizure. Her normal seizures are while sleeping so this was a rare thing for us. After that one seizure, she was fine. We thought maybe sleep deprivation had a role in all this. But then monday came around and we knew she had plenty of sleep. We documented 21 seizures from 5AM to 2:30PM, but we think she may have had more in her sleep. It was a very exhausting day for us. We did come to the realization that we need a new doctor. Ours would not work with us for some reason. We knew adivan would stop these seizures and her doc would not prescribe them. It was not till Larry called, that they gave us the prescription. I think they thought I was just an over reacting mom. Luckily a new pediatric neuro has moved to Asheville. Pray for us that he is better than the last. After 5 days of near silence, Savannah started talking to us Saturday evening and has not stopped. Her reading was affected and we have been working hard to get back on track. Thanks to all who sent her care packages and warm wishes. She truly feels loved and blessed.